Tuesday, April 30, 2013

Healthy and Happy at Home

Sorry for the delay in posting an update on our sweet girl.  It's been pretty busy around here, and Momma is tired, but happy, oh so happy.  All my babies are home and safe in their beds at night.  Or, as my Grammy says, "Lucy's finally got her caboosey at home!"  Lucy's platelet levels are holding steady, and we are told this whole thing is just, over.  She is healed.  No long term effects.  It's just a rare thing that has worked itself out now.  God is good!

These are some photos from the hospital the night before we brought Lucy home.  Nani brought Sam up to meet his little sister for the first time.  I've heard stories of siblings welcoming (and not so welcoming) their new baby into the family, and I have to say Sam is a natural big brother.  
He loves Lucy so much!


Sam brought the bunny rabbit he made for Lucy to the hospital to give to her.  

And, Lucy had a present for Sam too.  Sam has been wanting "Charlie" the steam engine for his collection.  I guess Lucy was listening, and that's just what she gave him when they met.

Nani got a chance to finally hold her healthy granddaughter.

Be still, my heart! 
 Sam wanted to hold Lucy's hand and sing to her.  Together with Daddy, they sang "Twinkle, Twinkle Little Star" and "Bless the Lord, Oh My Soul" to little Lucy while she slept.  I thought my heart was going to swell out of my chest!


I'm not sure it gets any cuter than this!  
What a blessing it is to have two healthy, happy babies!

By lunch time on Sunday, we were home with our girl.  Nani, Anamana, and all the boys were waiting to welcome us home (and hold the baby.)  All the boys are so very good with Lucy.  
She is a lucky little girl to have so many boys who will watch out for her.  

Sam wants Lucy to be a part of everything he does.  We were reading books before bed, and we HAD to bring baby Lucy with us.  So, off to Sam's big boy room we went to read until both kiddos had fallen asleep, together.  

Did I mention what a great helper Sam has become?!?
One morning, the house fell a little too silent, so I called out, "Sam, what are you doing?"  A small reply from another room said, "Oh, I'm just pumping..."  So, I put down what I was doing and found Sam in Lucy's room, like this... He's proud to help out however he can, my boy.

He feeds Lucy her bottles and even asks to "burp" her.  I'm amazed at how fast he is catching on to all this new baby stuff.  He sure is a smart and compassionate big brother.  

I am thankful for all the prayers of our friends, family, and even caring strangers who supported us through a stressful start.  And, most importantly, I am grateful to a loving God who has granted us the desire of our hearts.  Everything is right in my world.  My babies are healthy and happy at home.  

Saturday, April 20, 2013

Sunday's Coming

At our church, we have a phrase of hope when things are tough.  "It might be Friday now, but Sunday's coming."  It stems from an Easter service where we contrasted the hopelessness of Good Friday to the overwhelming joy and promise that Sunday morning would bring.  The application of that Easter message to our lives has never hit closer to home for me, than right now...
In the early hours of Tuesday morning, nurses came to tell me my newborn baby girl was in the NICU with dangerously low platelet levels.  Normal range is somewhere between 150-200 thousand.  Hers were 9,000. She could possibly have bleeding in her brain and major organs.  There were no answers yet for why this was happening to my baby.  I couldn't see her, hold her, or feed her. 
That was Tuesday, but Sunday's coming...
By Wednesday morning, my two-day old daughter had undergone a blood platelet transfusion.  She was being tested for a full gamut of infections, blood disorders, and dangerous viral diseases with long term effects.  Still no real answers for what was going on inside my girl. 
That was Wednesday, but Sunday's coming...
Thursday rolled around, and Lucy had undergone a second platelet transfusion.  This time her levels one hour after transfusion were 198k, which was a big step in the right direction, the first time we crossed into safe platelet levels so far.  However, she was still not holding on to her gains, and she dropped back down to 108k twelve hours later. 
That was Thursday, but Sunday's coming...
Friday marked the first day that little Lucy was making progress in the right direction on her own.  Without transfusions or IVIG treatments, she increased her own platelet levels by 7,000.  A small gain, but we would take it.  Dr. Walker seemed fairly confident that Lucy was not suffering from an infection or a life-threatening virus after all.  She was tentatively diagnosed with neonatal alloimmune thrombocytopenia.  Still no discussion about when our girl could come home though. 
That was Friday, but Sunday's coming...

Saturday morning, this morning, we made our usual call to the NICU to check on our girl's progress and found out her platelet counts had come up to 236k without any interventions!  Her body was winning the fight!  We celebrated our biggest win yet and prayed right then giving thanks to our God who is faithful to answer prayers and fulfill the desires of our hearts.  We headed to the hospital to visit our girl to find her detached from all wires, tubes, and monitors.  Dr. Walker came over to inform us Lucy was being released and could go home with us...tomorrow...Sunday. 
Right now, I type this post from a complimentary hospital room with my healthy baby girl asleep beside me.  We are "rooming in" with her tonight.  She finally got to meet her big brother this evening, and he is enthralled with her.  She will go in for one last set of lab tests in the morning, and provided all goes well, we will take her home around lunch tomorrow. 
It's Saturday now, and praise God, Sunday's coming! 

Thursday, April 18, 2013

Along Came Lucy

What a whirlwind these last couple of days have been.  Perhaps I should start from the top...

Monday morning on my way to school, I knew something was different about the way I was feeling.  By the time I got to school, I thought my water may have broken, but since I had never experienced that before and it wasn't like I'd seen in the movies, I wasn't sure.  Shortly after, I began having contractions, nothing too strong or serious, but noticeable.  I began timing them on my phone and they were coming fairly steady at five minutes apart.  But, I could talk and teach through them, so I did...all day until 8th period rolled around and it was hard to keep a straight face in front of students about every 3 minutes.  I skipped the faculty meeting and called Michael to ask him to meet me at my doctor's office to be checked; we might be having a baby today.  Sure enough, I was 5 centimeters dilated and water was broken, so we headed to the hospital.  By the time I got checked into a room and settled, I was at 7 centimeters.  Epidural, check.  Thirty minutes and four pushes later, we had a baby at 7:21 pm weighing in a 8lb. 1 oz. and 20.5 inches long.  It was just that easy.  I thank God for such an easy delivery, because I would need every ounce of strength I had a little later...

When Lucy was born she was VERY bruised, especially her face and shoulders.  We didn't think too much of it at the time because being born is a traumatic experience and some babies bare the marks. However, this was the first sign that something wasn't quite right with Lucy.  We bonded together for about an hour right after birth and then the nursery took her for labs, weight check and a bath.  When she came back again, she had started to develop a rash of speckly red dots on her head and other parts of her body.  Again, babies are born all colors, no worries.  She nursed well, and all was right with the world.





The nursery came in early the next morning to take her for her checkup with the pediatrician, and by 6:30 two nurses came back to our room to inform us that Lucy was being transferred immediately to the NICU.  They explained that the rash had spread all over her body and caused them to run some blood tests.  The results showed she had a severe blood platelet issue.  Normal platelet levels are somewhere between 150,000 and 400,000.  Lucy's platelet levels were 9,000.  She was diagnosed with neonatal thrombocytopenia.  Something was attacking her platelets, and her blood had almost no clotting ability.  What we thought was a rash and bruises was actually internal bleeding.

We were stunned into silence.  We couldn't see our baby.  We couldn't hold her.  I couldn't feed her.  We hadn't spoken to a  doctor.  All we could do was wait, and pray.  So that's what we did.  Immediately, we gave Lucy to our Healer in prayer and claimed complete healing in Jesus' name.  And even then, in that moment of great fear and unanswered questions, I felt God whisper, "I made her.  Don't you think I can take perfect care of her?"  And my heart had a peace, but the Momma in me was in tears.  I had to relinquish control.

The NICU doctor finally came to talk to us and explain what was going on.  She was extremely concerned about Lucy's platelet levels and observing her closely in the NICU.  She needed to be handled as little as possible.  There was a whole list of things that could be causing Lucy's condition ranging from "no big deal" to critically life-threatening.  She needed several more tests run and time to observe her.  She urged us to be patient...and stay off Google.  So we waited, and prayed, and alerted our friends and church families to pray.  Before long, our baby Lucy was on every prayer list in a tri-state radius, and we were humbled by the outpouring of love and support.

Dr. Ravenscroft decided to start a treatment of IVIG (intraveneous immunoglobulen) which would help to "protect" the platelets she had from further attack.  Shortly after, she decided a blood platelet transfusion was necessary.  I can now say from experience, signing a paper to okay a blood transfusion for your one-day old daughter is much harder than it sounds.  The doctor's priority was to at least bring Lucy's platelet count above a critical level.  We were shooting for above 50,000 after the transfusion.  The doctor also ordered a head ultrasound and chest x-rays to check for internal bleeding in her brain, heart, lungs and abdomen.  Talk about scary, but I refused to be overcome by worry and fear.  I didn't cause the situation.  I couldn't change the situation.  And, I was powerless to cure it.  But, I was completely leaning on someone who could...

I can't imagine what it must be like facing situations like these without a personal relationship with God.  There were moments when I couldn't breath.  I couldn't move.  I can't imagine processing all of this alone.  God has carried my husband and me on his shoulders.  I know so, because that's the only way I can sit here and type this right now.  By the end of day one, just when I thought I would break into tiny pieces, Lucy's platelet results after the transfusion came back at 75,000 and her x-rays and head ultrasound did not show any serious internal bleeding on her brain or major organs.  What a difference some good news can make!  My hope was renewed.  A major win for day one!

The next morning, Lucy's platelet levels had dropped back down to 45,000.  Something was still destroying her platelets, and we didn't know what.  The major suspect was alloimmune thrombocytopedia, meaning the antigens she inherited from Michael and me were attacking the platelets in her body.  Michael calls it a "street fight" in the blood.  And, believe me, with all the options on the table, this is the one we are hoping for.  Eventually, it will fix itself usually.  Still there were several tests needed to know for sure, and some of the tests wouldn't come back with results for several weeks.  The doctor ordered another round of IVIG and another blood platelet transfusion, a repeat of the prior day's events.  This time, Lucy's blood platelet results came back at 198,000 after transfusion, which was a total miracle from God.  In a day's time, Lucy had gone from 9,000 to 198,000, a normal range reading.  We just needed her to hang on to those levels...

This morning (day 3) her levels had dropped again to 108,000 still indicating a pretty aggressive level of attack.  We still don't know what, and I still haven't Googled it.  Dr. Ravenscroft says, "When you hear hoof sounds, you think horses...not zebras."  Meaning, there is a wide range of possibilities still on the table, we are going to look at the most common (and less serious) ones now, and worry about the zebras (less common and more dangerous) later.  She ordered another round of IVIG, but no transfusion this time.  We have been allowed to hold and feed her today since her levels are within a safe range, and she is not at risk of uncontrolled bleeding.  Lab results from this evening showed an increase to 130,000 platelets without a transfusion.  Another success.  All glory to God.  Again, just when I think I can't press on, God reminds me, "Lean on me.  I can handle this.  None of this has taken me by surprise."
Yet again, I have entered motherhood reminded that my children are not my own; they are His.  I am honored to have the opportunity to be Lucy's momma, but He is her Father.  He has her in the palm of his hand, and He doesn't make mistakes.  My baby girl is safe in her father's arms.  Each day, I am being refined as we live out God's plan for baby Lucy.  And just like gold must go through fire to bring out its true beauty, we must endure trials from time to time to grow closer to God and become more mature.  I am trusting and believing for complete healing and restoration of our little Lucy.

Sunday, April 7, 2013

Dating Sam

I've been trying to take Sam out on "dates" with me for a while now to spend some one-on-one time with him before little sister gets here.  Sometimes we go to the park for a picnic, or the playplace at Chik-Fil-A.  But today, was an extra special day for the two of us.  I got us tickets to see Veggie Tales Live!  We have been singing the Veggie Tales theme song for days in anticipation of this date.  He just about sqeals every time we talk about it, and I'm pretty sure he doesn't even know what a "live concert" is.  I can hardly get enough of this sweet boy's smile.

They had all kinds of games set up on the lawn in front of the Allen Arena for the kids to do before the show.  Sam was kind enough to pose for one picture by the pretty flowers, and then...

It was off to get his first tattoo, kick the winning soccer goal, and bounce in the inflatables.  This date was already a huge hit, and we hadn't even made it to our seats!

We found our seats and had lots of room on either side so we could get up and dance if we wanted.

My camera phone wasn't taking the best stage shots, but here's all the characters on stage for the opening number.  After that, Bob and Larry rarely were on stage together and Sam just couldn't get past that.  He was constantly asking, "Where's Bob?" or "Where's Larry?" when one would leave.  He wanted his eyes on both of them at all times.

At the intermission, we had to take a bathroom break and grab some popcorn and a drink.  The popcorn may or may not have been the highlight of the whole show.  We sang, danced a little, nodded our heads to the beat and laughed the afternoon away, together.  I am truly blessed to get to "date" this little guy.

Monday, April 1, 2013

Happy Easter 2013

We love Easter at our house.  We love Easter at our church.  We also love that Easter weekend kicks off the beginning of my spring break!  Sam set out his Easter basket in hopes the Bunny would fill it up while he slept...and he didn't disappoint!  The Easter bunny brought Sam some new pajamas, big boy underwear, a new book, bubbles, chalk and more candy than any child should have.  

When Sam got up this morning and saw what the bunny had left for him, 
he said, "I think the bunny likes me!"

It dawned on me this morning this was an extra special holiday, our last one as "the three of us."  Here is our last holiday family photo that doesn't include another sweet face.  God has blessed our family so abundantly.  Thank you Jesus for the opportunity to celebrate your tremendous act of love and courage so that we may live redeemed.  There is no greater love.

Willie Robertson was our guest speaker at church today for Easter, and boy did he attract a crowd.  We have one Saturday service and one Sunday morning service at the Murphy Center for Easter.  Both services were filled to capacity, over 12,000 people at each service.  

After church, we headed to Suzy's annual Easter feast and festivities.  Somehow we missed the memo to bring galoshes and rain gear, so we improvised.  Daddy made Sam a "rain suit" using two Kroger bags and some fancy knots.  We rolled his pants up, took off his shoes, and sent him off to hunt for eggs...in the rain.

 Daddy and Kimmie guided the kids while I watched from the porch and took photos.

Sam was particularly interested in the rubber snakes and made a run for two of them almost immediately.  After they were secured in the basket, he was ready to move on to looking for eggs.

Cameron has become quite the expert egg hunter.  


My boy didn't even seem to mind the cold, wet weather.  He had a blast hunting eggs.

Kimmie helped him through one minor setback...
All that tip-toeing through the grass tripped him up and he lost his loot!

My boy and me

Logan and Austin filled their baskets to the brim, 
emptied into bigger bags, and went back out for round two!

 Kayden is the master egg hunter at these gatherings.

This is what it looks like to set up a great family shot... (I kind of love this one!)

And, if you're lucky, this is what you hope to get!
The Norwood Clan

After watching Sam play with Grammy for a while, I got this great (yet crazy) idea to pile all the boys up in her lap and get a picture of her surrounded with all her great-grandsons...

Take one...
Jordan crying, Austin eating, Sam wondering what Austin was eating, and the others basically uninterested in getting a remotely good photo.

Take two...
Getting better, Jordan still not happy, Austin defending his food (probably from Sam)
and the rest are smiling and looking in the same direction.

This was about as good as it ever got.  
Gotta love a bunch of boys and a very patient Grammy.
Happy Easter 2013, that's a rap!